Sunday, June 30, 2013

New Gluten Free Product: Gluten-Free Pepperidge Farm Goldfish Puffs



It came to my attention, tonight, that a new product has been introduced into stores, like Target. The Pepperidge Farm Goldfish Puffs now offer three flavors that are gluten free! They are slightly larger than regular goldfish crackers, but, from what I hear, they are very tasty. You can find them at Target, next to the regular goldfish crackers. From what I hear, the following three flavors are fairly mild, so they are safe for your Celiac child to eat as a snack, or with lunch.

These are the flavors that are Gluten Free:
  • Buffalo Wing
  • Mega Cheese
  • Cheddar Bacon
 I must warn you, while it says Gluten Free on the back of the package, this product has NOT been certified gluten free, so there is a chance that there is some slight cross-contamination in this processed product. Be careful, and try at your own risk.

source: http://celiac-disease.com/review-gluten-free-pepperidge-farm-goldfish-puffs/

(photo courtesy of: https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq4AuL_kdDailD2Sr0_VCRztO9_oxVGMBT3Ebsw9-_YV2xNHmhREV2TcEruahTgf5TNGorFphCM3Wel2Iz5mEGTiXXDlMKOzpGqksE_j9k2zdbD6cykbiAcyhxEgp6Y4Hs7LJEKpT13f2S/s1600/goldfish-bags.jpg

Saturday, June 29, 2013

To Eat Gluten Free Oats, or Not To Eat Gluten Free Oats?



When you're diagnosed with Celiac Disease, you are given a list of what food you cannot eat. Wheat, Barley, Rye, and Oats. However, you find that there is such a thing as gluten free oats. You wonder if it is safe for you to chance eating it. You think to yourself: "It's gluten free, so it cannot be too bad, right?" Depending on how sensitive your Celiac is, it may be bad.

While a majority of Celiacs may be able to stomach gluten free oats, and granola, there are a small percentage of us that cannot handle GF oats and granola. I fall into the sensitive category. I loved eating oatmeal, before I was diagnosed with Celiac. After I was diagnosed, I was lost. It was not until a month or two after my diagnosis, where I discovered gluten free oats. I picked some up, and started eating it every morning for breakfast. It was not until day 3 of eating GF oats, where I began to feel sick. My stomach was cramping, I was fatigued, I was nauseated. I thought I had been "glutened." I looked back in my food diary, that I was keeping at the time, and the only thing different, that I had been eating, was the GF oats. I immediately threw the GF oats out.
A few months ago, I tried seeing if I could eat GF granola. 12 hours after I had my first serving, I got sick. I experienced the same symptoms as I did when I ate the GF oatmeal. I gave the GF granola to my boyfriend, so I did not have to throw it out. I now know not to eat GF oatmeal and granola.

You may be wondering: "How do I know if I am unable to process GF oats?" The only answer I can give you is, the same way I discovered my answer: trial and error. When you have Celiac Disease, you live a risky lifestyle. The only way to measure whether or not you can handle GF oats, is to try it. The majority of Celiacs can handle it. However, if you begin to feel ill after eating them, do NOT eat them again. Throw it away, or give it to someone else. My recommendation is, try pure uncontaminated oats. If the oats have a protein called, "avenin," it may trigger an immune response, similar to the kind you have when you are "glutened." 

One alternative to GF oats in the morning, that I LOVE is Rice and Shine hot cereal. I believe it's by a company called "Arrowhead Mills." It's hot rice cereal. It takes some getting used to, but, if you add brown sugar, or some fruit, it is pretty tasty.

(photo courtesy of: http://gracefullyglutenfreedotnet.files.wordpress.com/2012/05/oats.jpg?w=1024&h=768)

Celiac Disease and Hair Loss



Celiac Disease is a life-long, inherited, autoimmune disease. When the body is exposed to gluten, a protein found in wheat, barley, and rye, the immune system responds in an unusual manner. Gluten is seen as a threat to the body, and the body does not absorb this protein. In fact, this leaves the body devoid of essential nutrients the body needs to function properly. This lack of nutrients, causes significant damage to the interior surface of the small intestine. This causes potentially dangerous symptoms in people who have the Celiac gene.

Celiacs also face an iron deficiency, among other vitamin deficiencies. Studies have shown that their may be a correlation between vitamin and iron deficiency, and hair loss. Iron is a key nutrient, essential for hair growth.

People with Celiac Disease, and also anemia, are recommended to take iron supplements, to help regulate iron in the body. However, I recommend talking to your doctor, before you begin taking iron. Your doctor may order a complete blood count (CBC), just to check for iron and other vitamin deficiencies. If you begin taking iron supplements, before knowing whether or not you run an iron deficit, too much iron may harm you. Definitely talk to your doctor.

Source:  http://advancedhairstyle.com/hair-loss-treatment/celiac-disease-and-hair-loss.html

(photo courtesy of: http://cf.ltkcdn.net/gluten/images/std/130835-425x282-hairlossandceliacs.jpg)

Friday, June 28, 2013

Considering Summer Camp For Your Celiac Child?



 It is that time of year! School is out for the summer, and kids will be out playing. Some kids will be venturing off to summer camp. Summer camp is an amazing rite of passage for children. They can play, learn new skills, and make life-long friends with other kids at camp. However, if your a child with Celiac Disease, it could be a stressful time, for both child and parent.

The National Foundation for Celiac Awareness has a list of summer camps that are completely gluten free. Celiacs, and non-Celiac gluten sensitive children can go to these overnight camps, without worry of cross-contamination during mealtimes. Most of these camps have multiple sessions, and the camps are spread out across the country (http://www.celiaccentral.org/kids/gluten-free-camps/list/)

If you do not live near any of these camps listed on the NFCA website, you may consider a day camp nearby. With day camps, you will be able to send your child off with a gluten free lunch. However, it is suggested that you alert the camp staff ahead of time, that your child has Celiac Disease. Sometimes, day camps hold special event days, where regular food is served. Make sure the camp knows about your child's dietary restrictions.
If you are considering an overnight camp for your child, call the camp and ask them if they provide food for those children with food allergies, and Celiac Disease. If they do, let them know about your child's Celiac Disease, that way they will have ample time to purchase the food the child will be able to eat.
Also, ask the camp if the cooking staff have completed a gluten free training program. Ask the camp staff if there is someone the child can talk to, if the child becomes sick from cross-contamination.

No child should miss out on this rite of passage. Summer camp holds memories and friendships that can last a lifetime. Celiac children should be able to enjoy summer camp, without fear of cross-contamination, and ridicule.

Source: http://www.celiaccentral.org/summertips2013/summer-camp-selecting-the-best-option-for-your-gluten-free-kid-9859/

(photo courtesy of: http://cdn.sheknows.com/articles/2010/06/summer-camp-sign.jpg)

Thursday, June 27, 2013

Is There A Connection Between Celiac Disease and Crohn's Disease?


People have asked the question: Is there a connection between Celiac Disease and Crohn's Disease? Researchers have suggested that there is a connection. There are four genetic variations between Celiac Disease, and Crohn's. Those of us with Celiac Disease are at a higher risk for Crohn's Disease than the general population.

The four genes connecting the two diseases are as follows:
  • IL18RAP
  • PTPN2
  • TAGAP (this specific gene has been identified as a risk factor for Celiac Disease, but is now associated with Crohn's Disease as well.
  • PUS10 (this gene has previously been tied to Celiac Disease, Crohn's Disease, and also, Ulcerative Colitis.
Each one of these genes influence the responses of the Immune System when it comes to perceived threats entering the system.
Research shows that if you have one of these diseases, you are likely to have the other. Researchers have only begun to scratch the surface in terms of researching the correlation between the two.

One year after I was diagnosed with Celiac Disease, I had a biopsy. Even after being gluten free for a year, I still showed damage on my intestine. Another thing that my biopsy found, was, Ulcerative Colitis. After the biopsy, I was tested for Crohn's Disease. My Gastroenterologist theorized that the Colitis might be a precursor to Crohn's Disease. My test results came back inconclusive. I plan on being tested again.

Fellow Celiacs, it is important to be tested for both Colitis, and Crohn's. Just like Celiac Disease, both Colitis, and Crohn's are serious illnesses. It is better to be safe than sorry.

Source: www.celiac.com/articles/22440/1/Study-Shows-Celiac-Crohns-Disease-Share-Genetic-Links/Page1.html

(photo courtesy of: http://blog.glutenfreeclub.com/wp-content/uploads/2011/08/stomach_pains_woman.jpg)

Food Warning: Amy's Frozen Meals

Finding frozen dinners that are okay for Celiacs to consume is tough. People I have interacted with, tend to turn to Amy's frozen meals for that quick lunch or dinner. I was no different. When I first started my gluten free journey as a Celiac, I loaded up on those meals. I was working crazy hours as a caregiver. I was going from house to house, to take care of my clients. I never really had time to cook myself an actual meal. I needed something quick.

However, as much of a quick meal as Amy's is, there is something that you should know, before you purchase these meals. Amy's frozen dinners come with an allergen warning. The meals were made in the same facility as wheat products. Despite the Gluten Free logo on the box, there is still a chance of cross-contamination. I wanted to pass along this information. Celiacs are at different stages of their illness. Some are more sensitive than others. So, consuming Amy's frozen dinners may affect you. Some people have consumed meals that have actual cross-contamination, and have gotten sick.

Be careful when shopping and ALWAYS, ALWAYS, ALWAYS, read your labels. It is vital for our health and well-being.

Source:
http://www.celiac.com/gluten-free/topic/102665-warning-about-amys-frozen-meals/?utm_source=twitterfeed&utm_medium=twitter

(photo courtesy of: http://www.shape.com/sites/shape.com/files/imagecache/gallery_full_image/photo_gallery_picture_images/amys-rice-mac-and-cheese-420x420.jpg)

Wednesday, June 26, 2013

A Connection Between Celiac Disease and Lupus.



There is research that suggests that there is a connection between Celiac Disease, and Systemic Lupus Erythematosus (SLE).

Systemic Lupus Erythematosus is an incurable auto-immune disease that affects the skin, joints, kidneys, and brain. The body's immune system mistakenly attacks healthy tissue, which causes the following symptoms in people with SLE:
  • Sensitivity to sunlight
  • Fatigue
  • "Butterfly rash" on face
  • Unexplained fever
  • General discomfort
With both being auto-immune diseases, a person with Celiac Disease has a more elevated risk for SLE than the normal population. Research is still being conducted, but, those of us with Celiac Disease, should be checked for SLE, if we come down with any of the above symptoms.

Sources:
www.celiac.com/articles/23174/1/Celiac-Disease-Patients-Face-Higher-Risk-of-Systemic-Lupus/Page1.html
http://www.nlm.nih.gov/medlineplus/ency/article/000435.htm

(photo courtesy of: http://www.calmingtouch.biz/Portals/0/lupus-20910.jpg

Tuesday, June 25, 2013

Celiac Friendly Countries: Canada



Today's Celiac Friendly Country is America's friendly neighbor to the north: Canada. Many people have their opinions about Canada. I have my opinions as well. I love Canada, I have always wanted to visit Canada. Canada has so much that I want to see, and now that I know they are Celiac friendly, I want to visit the country now more than ever.

Canada's Celiac program, The Canadian Celiac Association, is the national voice of those diagnosed with Celiac Disease, and Gluten Intolerance. CCA is driven to improving Celiac Disease and Gluten Intolerance diagnoses.

Those in the Celiac community that live in, or have traveled to Canada, have recommended the following restaurants:
  • Off Broadway (Prince Edward Island)
  • St. James' Gate (Prince Edward Island)
  • Fisherman's Wharf Lobster Suppers (Prince Edward Island)
  • Home Place Inn & Restaurant (PEI-You must call this restaurant in advance)
  • Moxies
  • Kelsey's
  • Panne Rizo Bakery Cafe (Vancouver-The owner of the restaurant has Celiac Disease).
There are many more to list. The links below will guide you to a listing of Celiac Friendly restaurants. If you find yourself in Canada, check out these restaurants! In Canada, not only will you have a great vacation, you will be able to eat without worry.

 Sources:
http://www.celiac.ca/index.php/about-the-cca/mission-values/
http://www.celiac.com/gluten-free/topic/6039-celiac-friendly-restaurants-in-canada/

(photo courtesy of: http://nossomundoagora.files.wordpress.com/2011/06/canada.jpg)


Product Review: Three Bakers, Whole Grain Rye Style Bread.



If you are a seasoned Celiac like me, you know that some gluten free bread lacks in taste. They are not moist, the bread is crumbly, and certainly not worth the $6 a loaf you pay at the local supermarket.

However, there is one type of bread, that I have come across, that is absolutely amazing. Three Bakers is a 100% gluten free baked goods company. They are known for putting out amazing gluten free bread. One of the Three Bakers, Jane Trygar, is a fellow Celiac. She worked alongside her father (until he passed away), and her husband. Trygar was diagnosed with Celiac Disease in 2002. She and her husband have been working hard to make gluten free baked goods that are delicious.

Several months ago, as I was food shopping, I was looking in the GF frozen food section of my local supermarket. I noticed Three Bakers, Whole Grain Rye Style Bread. My heart skipped a beat. Before I was diagnosed with Celiac Disease, rye bread was my favorite bread of all time. I just loved the taste of it. After my diagnosis, I was upset because I could never have rye bread again.
When I saw the rye style bread, I immediately put it in my shopping basket. The next morning, I was making eggs and toast, using the rye style bread. I put my favorite jam on it, and took my first bite. Can I tell you, it was the best GF bread I have ever had! It tastes EXACTLY like rye bread.

If you are Celiac, and miss rye bread, you MUST pick up Three Bakers Whole Grain Rye Style Bread. The nutritional facts are very reasonable, only 140 calories. Sodium is only 230mg, which is pretty good for bread. They are fairly pricey, but, so worth it.

Sources:
http://www.threebakers.com/index.php/our-story/our-promise.html
http://www.celiac.com/glutenfreemall/three-bakers-style-glutenfree-bread-p-2433.html

(photo courtesy of: http://g-freenyc.com/wp-content/uploads/wpsc/product_images/three_bakers_rye_style_bread.jpg)

Gluten Free Foods in High Demand At Food Banks



I was looking around online, doing research on food banks in my state of Connecticut. With the economy the way it is, and with gluten free food prices being outrageous, it is nearly impossible for low income families to provide necessary food to their Celiac loved one. Some families are left no choice but to feed their Celiac child food containing gluten.

Some are left with a choice: either buy normal food that the whole family can eat, or buy gluten free food for the Celiac family member. I read a story where one mother was in that predicament, and she chose to get food containing gluten. Her Celiac child had no choice but to consume non GF food. Her child continued to have diarrhea, which is a symptom of Celiac Disease.

As someone who is on low-income, it is quite difficult to purchase GF food, but, I have no other choice. I am lucky to be on state assistance, so I am able to purchase the food. If I did not have state assistance, I would either go hungry, or be left with no choice but to eat food containing gluten. With my Celiac as bad as it is, I cannot imagine how sick I would be if I were in those situations. Many families find themselves in those situations, and it breaks my heart. If I think I'm oppressed because of my disease, what about those families who cannot obtain GF food at food banks?

Once I am back on my feet, working, and making money, I was thinking about giving back to the Celiac community. Those on low income, with Celiac Disease, who cannot afford the GF food they need, I want to help them by donating gluten free food. Or, I could run my own food bank. I know what it is like. The GF food prices are just ridiculous. Those of us with Celiac Disease have a duty, a responsibility, and the privilege to pay it forward. We need to help others in our community who cannot help themselves.

(photo courtesy of: http://couponchristine.com/wp-content/uploads/2012/09/food-banks.jpg)

Monday, June 24, 2013

Celiac Disease and Dental Defects


You may not have known this, but Celiac Disease affects more than just your small intestine. It can affect just about all areas of your body, including your teeth. It is fairly common for people suffering from Celiac Disease, to have dental problems.

Dental problems, due to Celiac Disease can involve anything from tooth discoloration, poor enamel formation, to translucent-looking teeth. Sadly, these problems are permanent, and do not get better once beginning a gluten free diet. However, some Celiacs have gone great lengths to hide these imperfections. Some have had their teeth whitened and have purchased veneers.

One thing that interested me in researching this subject, was the fact that, there are a lot of dentists out there that do not know that Celiac Disease can create dental problems. However, there are dentists out there that do know this correlation and have suspected that some patients may have Celiac Disease. The dentist, then, refers them to a GI doctor for further tests.

Dentists that are not well-versed in this correlation, often believe that a patient's dental issues stem from fluoride. There is work being done to better educate dentists on this correlation between Celiac Disease, and dental issues.

Sources:
http://celiac.nih.gov/DentalEnamel.aspx
http://www.theglobeandmail.com/life/health-and-fitness/health/conditions/tooth-damage-may-be-a-sign-of-celiac-disease-dental-professionals-told/article12346685/?cmpid=rss1

Photo credit: glutenfreeworks

Celiac Friendly States: Pennsylvania




Today, I decided to change things up a bit, and discuss states that are Celiac Friendly. Today's Celiac Friendly state is Pennsylvania. Pennsylvania became the second state in America, founded in 1787. The state motto is: "Virtue, Liberty, and Independence." If you're a Celiac, you will find PA a wonderful state to visit.

Pennsylvania participates in the GREAT program. This program focuses on training restaurants on how to prepare gluten free food safely. The program offers training to chefs and managers so they can handle gluten free food safely with us Celiacs in mind. If you travel to Philadelphia, PA, you will find restaurants that are highly qualified in providing exemplary service to those of us with Celiac Disease. 

Celiac travelers will, not only see a beautiful state, but, will also be able to frequent restaurants without worrying about cross-contamination. 

Sources:
http://www.celiac.com/articles/23198/1/Whats-the-Worlds-Most-Celiac-Friendly-Travel-Destination/Page1.html
 http://www.enchantedlearning.com/usa/states/pennsylvania/

(photo courtesy of:  http://res.us/wp-content/uploads/2011/11/pennsylvania2.jpg

Sunday, June 23, 2013

Celiac Friendly Countries: New Zealand



Today's Celiac Friendly Country is beautiful New Zealand. New Zealand is located 1,400 miles away from Australia, and is one of the most Celiac Friendly countries I have researched. People whom have traveled to this country have had almost no problems finding gluten free food, and indulging in local cuisine. Bakeries in New Zealand offer gluten free packaged baked goods. Some make gluten free bread, fresh, twice a week. Restaurants in this country are very well aware of Celiac Disease, and will accommodate our dietary restrictions.

The Coeliac Society of New Zealand, lists the names of businesses and distributors that offer gluten free food. New Zealand uses a two tier approach when they label foods gluten free. Their first tier of labeling gluten free food: The food does not contain gluten at all. Their second tier of labeling gluten free food: food should not contain more than 20mg of gluten, per 100 grams of food. It is recommended that Celiac travelers try to avoid this second tier of gluten free labeling.

New Zealand is a beautiful country, and I admire anyone who is able to visit this country. Being able to see all the sights of New Zealand is a thrill in itself. Being able to indulge in local cuisine without fear of being 'glutened,' well, that sounds like paradise to me. :-)


Source: http://www.celiactravelguide.com/2008/04/its-all-good-in-new-zealand.html

(photo courtesy of: http://www.dvd-ppt-slideshow.com/blog/wp-content/uploads/2011/10/new-zealand-wallpaper-7.jpg)

Saturday, June 22, 2013

Celiac Friendly Countries: Argentina



Today's Celiac Friendly country brings us to Argentina. Argentina is one of the most Celiac friendly countries in the world. With a law that passed toward the end of 2009, products must be labelled gluten free, so Celiacs know that it is safe for consumption.

If traveling to Buenos Aires, Argentina, you will find many stores with a wheat free symbol, which says 'Sin TACC," which translates to "without wheat, barley, rye, and oats." Also, during your travels to Buenos Aires, you will find a few cafes, which will have signs in the windows, saying 'Aptos para celiacos,' meaning, 'suitable for coeliacs.'

Fellow Celiacs that have traveled to Buenos Aires, have spoken a great deal about a bakery called, "Celigourmet," which is a 100% gluten free bakery. People have raved about their baked goods, and sandwiches. Restaurants are well aware of Celiac Disease, and the importance of being gluten free.

So, if you find yourself craving a South American getaway, choose beautiful Argentina. Not only will you be able to take in the wonders of this lovely country, you will be able to indulge in some succulent gluten free treats, native to the area.


Sources:
http://glutenfreetraveller.com/topics-2/travel-adventures/first-impressions-of-buenos-aires/
http://happyceliac.wordpress.com/2011/11/23/gluten-free-in-argentina-part-22/

(photo courtesy of:  http://upload.wikimedia.org/wikipedia/commons/thumb/7/77/Buenos_Aires_-Argentina-_136.jpg/800px-Buenos_Aires_-Argentina-_136.jpg

A Quick Note

  Hello everyone! Just wanted to touch base and see how everyone is doing. I have been quite busy with writing. This morning, I had an amazing story idea. I researched books on amazon, and there are hardly any novels about a main character having Celiac Disease. So, I have decided to write a story about a high schooler struggling, not only with growing pains, but also with being Celiac. I'm going to release the story in e-book format, in four parts: Freshman Year, Sophomore Year, Junior Year, and Senior Year. This main character is going to do a lot of great things in her high school, and I hope it inspires any Celiac, young and old, to make changes of their own, in their community, in order to raise awareness. More and more people are being diagnosed with this disease, so it is important to educate our communities about this disease.
I hope everyone is well, and I hope you all have a great weekend.
Your Celiac warrior,
Shauna
 
(photo courtesy of: https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPcTwMOPnhyca4UV9XKaJdSwArYcwph5a4xmK-1Jo3BdmFaQ2qtr1VVgjbDs_NFHnQTVpJOR8mpjArOsROFhEJymyxWCtL4SJpw3tLt43Z3QD9i-GN7pyfNbUpbn2HuuO4KSaUhzO9Fcc/s1600/girl+writing.jpg)

Friday, June 21, 2013

Celiac Friendly Countries: Australia



After the popularity of my first Celiac Friendly Country, India, I decided to make this a regular series. I will be researching a wide variety of countries, in attempt to help my fellow Celiac brothers and sisters choose a Celiac friendly vacation spot.

My Celiac friendly Country for today focuses on Australia. Australia is one of the most Celiac friendly Countries in the world. Australia is extremely Celiac aware, and this is quite apparent as you look at their gluten free legislation. There are several restaurants and grocery stores where you can find a wide variety of gluten free options

In Sydney, Australia, there are several supermarkets and restaurants that offer gluten free options:
  • Porterhouse Irish Pub: This restaurant has a couple of gluten free options, marked gluten free. Entrees that are gluten free, include : Scallops marinated in basil pesto.
  • Thomas Dux: This grocery story contains a wide variety of gluten free foods. The section is marked by a large red sign that says "Gluten Free." There are many Thomas Dux locations throughout Australia. 
If you are Celiac, and planning to travel, consider Australia. With the above businesses, and many others, you will have an enjoyable, and symptom-free experience.

Source: http://glutenfreetraveller.com/topics-2/travel-adventures/gluten-free-sydney-australia/

(photo courtesy of: http://www.photography-match.com/views/images/gallery/Sydney_Australia.jpg)

Why Self-Diagnosis of Celiac Disease Can Be Harmful



I have been researching various websites on the topic of Celiac Disease. A majority of these websites have forums, where readers can comment on what they have read. Some of the comments I have read are pretty disturbing. There have been people who state that they feel sick after eating bread, or anything else with gluten in it. Then they say that they may have Celiac Disease, and instead of going to the doctor, they put themselves on a gluten free diet, and automatically feel better. Then, they try eating food with gluten in it, and then get sick. Now they're convinced they have Celiac Disease. They go back on the gluten free diet, and stay on it.

I have a serious problem with people who self-diagnose themselves with Celiac Disease. For one thing, if you suspect you have Celiac, you need to go to the doctor, BEFORE going on a gluten free diet. Here's the reason why: The doctor will order a blood test, and a biopsy, to see if you do have Celiac. If you begin eating gluten free food, before these tests, Celiac Disease will NOT show up on the blood test and biopsy. You are only screwing yourselves if you diagnose yourself as Celiac. Only the doctor can diagnose you. Celiac is a serious illness, and should not be messed with. Trust me, you don't want to suffer the consequences of not being properly diagnosed.

I was diagnosed "very positive" with Celiac Disease. I went YEARS experiencing symptoms. I was diagnosed with Irritable Bowel Syndrome (IBS) when I was very young, and I later found out that Celiac is always mistaken with IBS. I should have been tested for Celiac when I was 11 years of age. However, back then, Celiac Disease was extremely rare, and gluten free food was impossible to find.
Last year, I had an endoscopy and colonoscopy. Despite being gluten free since 2011, my biopsy still showed Celiac Disease damage. That is what happens when you go years without being properly diagnosed.

Like I said, if you suspect that you have Celiac, or an allergy to gluten, make an appointment with your doctor BEFORE going gluten free. As soon as you have symptoms of intolerance, talk to your doctor. The earlier you are diagnosed, the easier it is to heal the small intestine.

(photo courtesy of: http://www.celiac.com/content_images/celiac_disease_symptoms_thumb.jpg)

Thursday, June 20, 2013

Online Store Reviews For Celiacs: Vitacost


As you know, it is hard to find an online store that has Gluten Free foods at inexpensive prices. However, 7 months ago, I stumbled upon www.vitacost.com. Vitacost offers health and wellness products that are, up to 50% off the regular retail price. This site sells nearly 40,000 products, and has a Gluten Free section for us Celiacs.

The prices are absolutely incredible, even if you decide to purchase Gluten Free foods in bulk. They have everything, from breakfast foods, to breads, to candy, to pasta, and soups.

To navigate the Gluten Free Favorites section, go to:
www.vitacost.com, mouse over to the foods section, click on Gluten Free Favorites (http://www.vitacost.com/gluten-free-products).
Here, if you look on the left hand side, you will find several categories of Gluten Free foods available for purchase. 

This site is always having sales and special deals. If you sign up for their e-newsletter, they contact you when they have specials on the site, which is, practically, everyday!

This site also specializes in pet food, vitamins, beauty products, baby food, and protein powders. All at reasonable prices, and top notch quality.

Shipping is reasonable, about $4.99. If you spend over $49, shipping is free. The products arrive quickly. I have been a customer of Vitacost's for 7 months, and have never had a problem with them. People I know have never had a problem with them. If a problem does happen, they have world class customer service that are eager to help you.

Vitacost truly cares about their customers, and want them to keep coming back. It is rare to find an online store that truly cares about you. Vitacost is a gem, and I will be a customer of theirs for a very long time.

Source: http://www.vitacost.com/company
(photo courtesy of: http://ts3.mm.bing.net/th?id=H.4633257170371022&pid=15.1)

Wednesday, June 19, 2013

Celiac Disease and Advil



Do you have Celiac Disease, and suffer from migraines, or any other body aches? Do NOT take Advil. Advil contains a wheat derivative that could cause you more problems than just body aches.

Here is a list of Gluten Free alternatives:
  • Excedrin extra strength
  • Ibuprofen
  • Motrin
  • Naproxen
When in doubt, read the label. If you are confused about what the ingredients are, check with your pharmacist, or your doctor. They will be able to help you.
The last thing you need is to be "glutened" by pain/inflammation medications.

Sources:
http://celiac-disease.com/medications/
http://www.advil.com/faqs?search=Gluten&field_faq

(photo courtesy of: http://blog.glutenfreeclub.com/wp-content/uploads/2011/03/Hands_holding_pill_container.jpg)

Celiac Friendly Countries: India




Dealing with Celiac Disease is tough, traveling while having Celiac Disease, is a whole new level of tough. There aren't many countries that are considered safe for us Celiacs. Some countries do not even know what Celiac is, so explaining our disease to people abroad, may prove to be a challenge.
However, there is one country that I have researched that does have food that is naturally Gluten Free:
India!

Middle eastern food is made up of meat, vegetables with sauce, and rice. Curry in India is also naturally Gluten Free!
Recently, I read an article about a student studying abroad in India. She has Celiac Disease, and she was uncertain if she could live in India with this disease. She found out that India is Celiac friendly. She stuck to a diet of rice and curry, and she had no problems whatsoever.

I'm not saying that you won't run into any issues in India, you might. However, the lifestyle in India is more Celiac friendly than others. Still, be cautious, no matter where your travels take you!

Sources:
http://universe.byu.edu/2013/06/05/1from-india-to-provo/

(photo courtesy of: http://www.eatinghabits.org/wp-content/uploads/2010/09/indian-food-300x225.jpg)

Celiacs: Why You Should Encourage Your Family To Get Tested For The Celiac Gene.


 Celiac Disease is an inherited, auto-immune disorder that affects 1 in 133 people in America. If you have been diagnosed with Celiac Disease, more than likely, you inherited the disease from an immediate family member. When you doctor discusses your diagnosis, your doctor may ask you about your family's medical history of Celiac Disease. If you are unsure, you must discuss your family's history with your family.

Since the disease is hereditary, it is essential to encourage your family members to get tested for the Celiac gene. Early detection can help nip the disease in the bud, before the disease is followed by life-threatening complications. The longer you wait to be tested and diagnosed, the more damage is being done to your small intestine, making your body susceptible to illness. Undiagnosed Celiac Disease can cause dangerous complications, such as: Osteoporosis, Cancer, and infertility in women.

When I was diagnosed with Celiac Disease, two years ago, I encouraged my father to get tested for the gene. To this day, he has not gone to the doctor to be tested for the gene. I'm going to keep encouraging the rest of my family, including my father, until they give in and get tested.

I encourage all my Celiac brothers and sisters, to encourage their family members to be tested for the gene. You never know, you could be saving their life! Trust me, if they have the gene, they will thank you for encouraging them to be tested.

(photo courtesy of: http://ghr.nlm.nih.gov/handbook/illustrations/pedigree.jpg)

Tuesday, June 18, 2013

Celiac Disease and Genetics



When I was diagnosed with Celiac Disease, I had no idea what this was, or how I got it. I asked the Registered Nurse at my doctor's office, what Celiac Disease was, and how I got it. She told me about a website that I should check out (www.badgut.com). She said that the information on the website should answer all my questions.

As I dove into researching Celiac Disease, I found out that the disease is genetic. I inherited it. Suddenly, I remembered that my grandmother had the disease. I remembered all the hell she went through, in terms of her failing health, and food. I worried that the same thing was going to happen to me. To this day, I still worry that I may suffer the same failing health.
It is said that the disease is sometimes triggered, or becomes activated if one of the following happens: surgery, pregnancy, childbirth, viral infection, or severe emotional stress. Celiac Disease can become active at any point in life.

As of right now, no one else in my family is diagnosed with Celiac Disease. However, I have requested for them to get tested, just to make sure they do not have the Celiac gene.

It is important to make sure you know your family's health history. This could help with early detection of Celiac Disease.

Source: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

(photo courtesy of: http://www.buzzle.com/img/articleImages/272422-24128-41.jpg)

The Gluten in Medicine Disclosure Act


Last month, representatives Nita Lowey, and Tim Ryan, introduced The Gluten in Medicine Disclosure Act. This act would make it easier to identify Gluten in drug products. There are some medications that contain hidden Gluten, and could cause a Celiac some problems. Labeling drug products with ingredients could help both doctors and patients with finding treatments for various illnesses.

Celiac Disease has increased as much as four times in the past decade. The only treatment for Celiac Disease is a life-long adherence to a Gluten Free diet. For some individuals, exposure to Gluten can be life threatening.

On representative Ryan's webpage, he discusses his vision for this legislation:
“Celiac disease is a growing issue for our country and as elected officials it is our duty to give those affected all the resources they need to treat their disease. The United States already mandates that food products containing wheat are adequately labeled and there is no reason why we shouldn’t do the same for our medications. I am proud to introduce legislation that can help avert the serious health risk millions of Americans are forced to endure every day while taking unlabeled, potentially harmful medications." -Congressman Tim Ryan (OH).

Lowey also made a statement about the new legislation proposal:
“For millions of Americans, avoiding gluten is a medical necessity. Just as consumers deserve to know if their food contains gluten, it is critical that consumers know if medications contain gluten. This legislation would help protect Americans’ health by giving them information on the label to ensure their medications help -- not hurt – them.” -Congresswoman Nita Lowey (NY).

This legislation would be a welcome to those of us in the Celiac community. It is bad enough to have hidden Gluten in food, the last thing we need is to be "glutened" from medication.

Source:
http://timryan.house.gov/press-release/representatives-tim-ryan-oh-13-and-nita-lowey-ny-17-introduce-gluten-medicine

(photo courtesy of: http://eatgfcf.files.wordpress.com/2012/07/medication.jpg)

Celiac Spotlight: Deborah Ann Woll



In today's Celiac Spotlight, we have 28 year old "True Blood" star, Deborah Ann Woll. This young lady began her television career in 2007, playing a rape victim on NBC cop drama, "Life." After appearing on numerous other shows, Deborah Ann Woll got the part of vampire Jessica Hamby, on "True Blood."

Deborah Ann Woll also suffers from Celiac Disease. In 2009, Woll announced during an interview with www.contactmusic.com, that she has Celiac Disease. She states that she consumes a lot of meat, vegetable, and rice products, in order to provide her body the nutrients it needs to stay healthy.


Sources:
 http://www.celiaccentral.org/News/NFCA-Blogs/Did-You-Hear/Did-You-Hear-Gluten-Free-in-the-Mainstream/389/vobid--3583/
 http://deborahannwoll.net/information/

(photo courtesy of:  https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNfKdTzE1krgFcuV4pJX1qoY_kTC5sOaC-J_HJtbQcV9GRzaNWuNFn3k8PqeBWwg0u-RAwUwt12nEDPf7OAvbq9mFo_hFee5c6XBnQyc8Kwqqg0NZvddlFaEMx7HQm2g3ft93kRrQ_Jy0/s400/Picture2048.jpg)

Monday, June 17, 2013

Bipolar Spotlight: Demi Lovato


Since the Celiac Spotlight is coming to an end, I will be starting the Bipolar Spotlight.
I wanted to start this series, showcasing a young lady who has been through so much in her young life. Demi Lovato is a product of The Disney Channel. She is an actress and singer. She is mainly known as Selena Gomez's best friend in real life.

A few years ago, one thing she was known for, was her highly publicized personal struggles. Demi Lovato sought treatment for self-injury, bulimia, and self-medicating with alcohol and prescriptions. During her treatment, she was diagnosed with Bipolar Disorder.

Since her diagnosis, she has been fairly vocal about her struggles, in hopes of reaching teenagers who are going through the same thing. She has discussed how she was bullied out of her school, and chose to be home-schooled.

I think it's a wonderful thing that she is doing. Teenagers do not have a whole lot of positive young role models to look up to. It's refreshing that they have someone like Demi Lovato, who has been through Bipolar Disorder, to look up to. Teens can relate to her. Demi Lovato is a courageous young woman, with a bright future ahead of her.

Source:
http://en.wikipedia.org/wiki/Demi_Lovato#2010.E2.80.9312:_Personal_struggles.2C_acting_hiatus.2C_and_Unbroken

(photo courtesy of: http://downloads.xdesktopwallpapers.com/wp-content/uploads/2012/01/Demi%20Lovato%20Smiling%20And%20Singing%20In%20Vh1%20Do%20Something%20Awards.jpg

Celiac Spotlight: Heidi Collins


 In today's second to last Celiac Spotlight, we have CNN anchorwoman, Heidi Collins. I chose Heidi Collins for the Celiac Spotlight because she has become a strong voice for the NFCA (National Foundation for Celiac Awareness).
It took a decade for Heidi Collins to be diagnosed with Celiac Disease. She was feeling fatigued, dealing with stomach problems, etc. She visited numerous doctors and specialists, but, they had no idea what was making her so ill. After she gave birth to her son, Riley, she was finally diagnosed with Celiac Disease.
Sadly, she is not alone in her fight. Her son, Riley, also has Celiac Disease. Her son has been able to adapt very well to the life change. He understands Celiac Disease.

Heidi Collins wanted to join the NFCA in order to raise awareness on Celiac Disease. During her career, she has had to travel a great deal, and airlines do NOT have a Gluten Free option for Celiacs. She wants to change that. She also wants to educate the world, so that more people can be diagnosed properly, and begin treatment, before they suffer the complications of Celiac Disease.

My thanks goes out to Heidi Collins, for all the hard work she has done for the Celiac community. You have truly been doing something remarkable by raising awareness about our disease.

Sources:
http://www.celiaccentral.org/press-room/NFCA-Press-Releases/Celiac-Disease-in-the-News/160/vobid--698/
http://www.everydayhealth.com/digestive-health/ibs/mylife/heidi_collins/landing.aspx

(photo courtesy of: http://www.thesimpleceliac.com/images/heidi-collins.jpg

Off Topic Post: Meeting "Biggest Loser" Winner, Danni Allen, and, Trainer, Brett Hoebel!


This morning, despite feeling ill due to accidental "glutening," I drove 30 minutes to see Biggest Loser, season 14 winner, Danni Allen. Danni Allen was the sole member of Jillian Michael's white team last season. When she started the show, she weighed 258 pounds. At finale, she weighed in at 137. She lost 121 pounds! She lost half of her 50% of her body weight, and won $250,000. Now, she is traveling the country, speaking about her experience on the show, and offering advice on how America can get fit.

Danni Allen, and season 11 trainer, Brett Hoebel are in Connecticut, and are traveling to 8 Planet Fitness gyms, to meet and greet Biggest Loser Fans. When I arrived at the gym, there were a couple dozen people, waiting to meet Danni Allen, and Brett Hoebel. At 10:15, both Danni and Brett, entered Planet Fitness. Danni looks phenomenal. She is the sweetest young lady, and was really excited to meet everyone, and take pictures with everyone.



Brett Hoebel was there, offering fitness tips, taking pictures, and signing autographs as well. I talked with a few fellow fans of Danni Allen, and they were just as excited as I was to meet her. I was tongue-tied. Being such a homebody, being in a crowd of people, and meeting one of my fitness inspirations, I clammed up! I had so much I wanted to say, and I just could not speak.
I had to cut my visit short, because I was feeling uncomfortable, and still under the weather. I took pictures with both Danni and Brett, which I was not really expecting, and I got autographs.
It was definitely worth the drive up. One of Connecticut's radio stations was there, and also a cameraman. I did not catch which news station he was with.
All in all, it was great to meet her. She is a tiny thing, LOL!





+Biggestloser
+DanniAllen
+BrettHoebel
+PlanetFitness

(photos courtesy of: Shauna S- Me)
(article featured on Bubblews:  http://www.bubblews.com/news/674954-meeting-quotthe-biggest-loserquot-season-14-winner-danni-allen-and-trainer-brett-hoebel)

Sunday, June 16, 2013

Celiacs: What To Do If You Accidentally Eat Food Containing Gluten.


Going Gluten Free is never an easy transition, as I have stated many times on this blog, but, the transition is worth it. However, accidents DO happen and you may accidentally ingest Gluten. Depending on your level of the disease, you could start feeling the effects within hours, and the symptoms could last for days. I have been diagnosed with Celiac Disease for two years now, and I have had my run ins with being “glutened.” It is not pretty, you are going to feel like crap for a little while. When I am "glutened," I get painful stomach cramping, rashes, bloating, minor stomach upset, fatigue, and chronic diarrhea. The diarrhea can be a problem for me, because my potassium levels drop very low.
I’m going to share with you ways to help you feel comfortable, as you ride it out.

  1. Drink Tea- Drinking tea, mainly peppermint tea, can help you with the stomach upset, plus it will help you stay hydrated. Tea will help relax you as you ride this Glutened period out. Make sure the tea is Gluten Free.
  2. Eat light- If you have upset stomach, eat light. Eat what ever you would eat if you had a stomach bug. Avoid dairy, especially if you have the diarrhea symptoms.
  3. Heating Pad- Heating pads can help alleviate the discomfort of stomach cramps.
  4. Laxatives- People in the Celiac community have taken laxatives to help get the gluten poison out of the body faster. Do not go overboard with the laxatives. Some Celiacs have become dependent on them. If you do end up with diarrhea, make sure you keep up with the fluids, and make sure you are eating enough Potassium in your diet.
  5. Just ride it out- There is no magic pill to get rid of these symptoms. The best thing that you can do is just allow your body to do its thing and get better. With all these symptoms, you will feel quite fatigued. Allowing yourself to rest a bit will help your body work faster to get better.
  6. Imodium- People have said that Imodium will help with discomfort.
Being "Glutened" will happen, we just need to be more careful next time. We have this disease for the rest of our lives, and we will encounter this situation every once in a while. The only thing you can do is ride it out. Stay hydrated, avoid dairy, eat light, drink tea, and use the heating pad.

(photo courtesy of: http://ts4.explicit.bing.net/th?id=H.4928613449664795&pid=15.1)

Saturday, June 15, 2013

Celiac Spotlight Series Will Soon Be Coming To An End.



I have written about several celebrities that have been diagnosed with Celiac Disease. On Tuesday, I will be writing my last Celiac Spotlight piece. I have been unable to find more celebrities with this auto-immune disease.

Therefore, I will be starting various other series. The main series will be called, Bipolar Spotlight, where I will talk about a celebrity that has been diagnosed with Bipolar disorder. I will also be writing GF Restaurant, and GF store reviews. Along with that, I will review various GF products, to better help new Celiacs pick out the most nutritious and delicious GF foods.

When someone is first diagnosed with Celiac Disease, they may wonder what GF foods taste like, and for picky eaters, this transition can be extremely difficult. Therefore, as a fellow picky eater, I feel it would be helpful for me to review these foods for you, so you know what to purchase at the store. GF food is expensive, and you don't want to waste your money on something that taste horrible, right? 

Anyways, I hope you enjoyed the Celiac Spotlight series, and I hope you enjoy these upcoming projects!

(photo courtesy of: http://ts3.mm.bing.net/th?id=H.5066344468842942&pid=15.1)

Celiac Spotlight: Sarah Jay Brown


In today's Celiac Spotlight, we have, actress, Sarah Jay Brown. Those of you who watch daytime soaps, know her as "Carly Benson Corinthos" from hit soap, "General Hospital." Brown was on "General Hospital," from 1996 to 2001. She later returned to the show, as a different character. Her character's name was "Claudia Corinthos." She left "General Hospital" in 2009, and went on to play "Aggie Jones," in hit soap, "The Bold and the Beautiful." She has, recently, been seen on "Days of Our Lives."

What is not well-known about her, is that she has Celiac Disease. Her first symptom of Celiac Disease was her swollen face. She first thought she was dealing with water retention. Then she began having stomach problems, fatigue, and she broke out in rashes. It turns out, many of her family members were experiencing similar symptoms.

It wasn't until 2007-2008, when she was properly diagnosed with Celiac Disease. The road to her diagnosis was not easy. She realized that her face became swollen after eating bread, so she photographed her face when it was swollen. She went to UCLA, and herself, and seven of her family members, were diagnosed with Celiac Disease. Once they went on a Gluten Free diet, their symptoms disappeared.

Celiac Disease is an inherited auto-immune disorder. It is no surprise that her family also has Celiac Disease. Her story is one that many of us share. We all had suffered years of symptoms, before being properly diagnosed. The most important thing, is that Sarah Jay Brown, and her family, are feeling better, and they are in this situation together.

(photo courtesy of: http://images.lifescript.com/Media/Lifescript%20Media/Article%20Images/Sarah_Brown/Sarah_Brown_symptoms_of_celiac_disease_article.jpg)

Sources:
http://www.lifescript.com/health/centers/autoimmune_disorders/articles/how_symptoms_of_celiac_disease_changed_sarah_browns_life.aspx

http://en.wikipedia.org/wiki/Sarah_Brown_%28actress%29

Friday, June 14, 2013

Celiac Spotlight: Amy Yoder Begley



Today's Celiac Spotlight shines upon Olympian runner Amy Yoder Begley. Known for her long distance running, she also is diagnosed with Celiac Disease.

Yoder Begley was diagnosed with Celiac Disease in 2006, and discusses her struggles with Celiac Disease, and traveling. She mentions that she has difficulty eating out while traveling. She often carries Gluten Free bars and translation cards that explain what she can eat, plus the cards discusses what Celiac Disease is. This is an excellent idea that any traveling Celiac should utilize. Amy Yoder Begley is a true role model!

Sources:
http://celiac-disease.com/more-on-amy-yoder-begley/
http://en.wikipedia.org/wiki/Amy_Yoder_Begley

(photo courtesy of: http://ts3.mm.bing.net/th?id=H.4772792047764450&pid=15.1)

Thursday, June 13, 2013

Celiac Spotlight: Emmy Rossum



In today's Celiac Spotlight, we have, the lovely, actress/singer-songwriter, Emmy Rossum. Emmy Rossum is best known for her beautiful singing voice, and, her acting talents in movies, such as "The Phantom of the Opera," and, "The Day After Tomorrow." One thing that is not well-known about her is, she has Celiac Disease.

Emmy Rossum announced her diagnosis of Celiac Disease on MTV news, when she was given a cupcake for her 22nd birthday on camera. She was only able to eat the frosting on the cupcake.

It's refreshing to see a young actress/singer talking about her diagnosis.

Source:
http://en.wikipedia.org/wiki/Emmy_Rossum

(photo courtesy of: http://www.dontbelieveus.com/wp-content/uploads/2012/11/emmy-7.jpg)

Celiacs In The Restaurant Business, And Work Discrimination


Today, I been thinking a lot about restaurants, and wondered how many Celiacs work in a non Gluten Free restaurant. I was thinking how hard and awkward it must be to be a waiter or waitress in these restaurants. In restaurants, patrons often ask how a certain dish tastes, and this would be difficult for a Celiac to answer, since we cannot eat food containing Gluten. This would put the waitress and the patrons in an uncomfortable situation. What if a restaurant the Celiac is working in does not have a Gluten Free menu? This would make things even worse.

This is why I think it is important for all restaurants to have a Gluten Free menu. For most meals, you can make a Gluten Free option. The waiter/waitress may be better able to help the patron in making their meal choice. The Celiac may not know what the dish tastes like exactly, but, they can give the patron a good idea of what the meal would taste like.

Work Discrimination
Despite the fact that most places state that they are an equal opportunity employer, Celiacs that are looking for jobs in the restaurant business may have a slightly higher chance of not being hired due to their dietary restriction. Not only because we are unable to taste test the food, but, also the fact that if we are "glutened," we can become very ill, and unable to work. I'm not saying that this will happen, I'm saying that there is a chance of this happening.

Any thoughts on this? Celiacs in the restaurant business, have you encountered discrimination in the workplace? Have you had an awkward experience talking to patrons about the food at the restaurant?

Wednesday, June 12, 2013

Celiac Spotlight: Joe C



In today's Celiac Spotlight, we have the late Joe C. Joe C was most known for his collaborations with rapper/rocker Kid Rock. He often was the comic relief on several Kid Rock songs.
Joe C was born Joe Calleja, in Michigan, in 1974. He suffered from Celiac Disease, which caused his dwarfism. As an adult, he reached a height of 3'9". Joe C was on 60 pills a day, due to his severe case of Celiac Disease, and required constant medical treatment.

A week after his 26th birthday, in November, of the year 2000,  Joe C passed away in his sleep. He passed away from complications of Celiac Disease.
In Joe C's case, his level of Celiac Disease was very rare. However, people have died from Celiac Disease, which is why it is imperative that we raise awareness of this disease, find a cure, so that it does not take any more lives.

Source:
http://en.wikipedia.org/wiki/Joe_C.

(photo courtesy of: http://ts4.mm.bing.net/th?id=H.4704128384370927&pid=15.1)

Tuesday, June 11, 2013

Celiac Women At a Decreased Risk for Hormone-Related Cancers.


When it comes to Celiac Disease, there really are not many benefits to the disease. However, research has shown that women, who have been diagnosed with Celiac Disease, are at a lower risk for hormone-related cancers, which include Endometrial, Breast, and Ovarian Cancers. Women with Celiac Disease are 15% less likely to develop Breast Cancer, 40% less likely to develop Endometrial Cancer, and 11% less like to develop Ovarian Cancer.

Researchers believe that this is due to a decreased level of female hormones that promote reproductive Cancers.

Sources:
http://thesavvyceliac.com/2012/09/22/celiac-may-reduce-breast-cancer-in-women/
http://www.celiac.com/articles/23048/1/Women-With-Celiac-Disease-At-Lower-Risk-for-Hormone-Related-Cancers/Page1.html

(photo courtesy of: http://uvahealth.com/services/digestive-health-1/images-and-docs/landing_page_main_digestive2.jpg/image_large)

Celiac Spotlight: Jennifer Esposito


Today’s Celiac Spotlight shines upon actress Jennifer Esposito, who went public with her Celiac Disease in October 2011. She made the announcement on “The Late Show With David Letterman.” She said that she was diagnosed in 2009.

For many years, Esposito suffered “constant stomach problems, panic attacks, joint pain, and severe weakness.” She went to the doctor, and was speechless when her doctor told her that she has Celiac Disease. Esposito stared at her doctor, with tears rolling down her cheeks. She could not believe what she was hearing. It was a diagnosis that changed her life forever.

Esposito has appeared on such shows as “Law and Order: SUV,” “Spin City,” and “Samantha Who.” Most recently, she has appeared in the third season of “Blue Bloods.” While she was filming the third season, she collapsed. Doctors requested that she miss a week of work, due to the collapse. The collapse was brought on by her Celiac Disease. CBS did not adhere to the doctor’s orders for Esposito, they put her on unpaid leave, and blocked her from working anywhere else. CBS believed that Esposito was lying and felt that she was looking for a raise. She was then put on indefinite unpaid leave of absence. Esposito took to Twitter and unloaded about what CBS did to her.

I do not blame Esposito for being livid. Society is completely ignorant when it comes to this potentially fatal auto-immune disease. Many Celiacs suffer oppression, whether it be at work, at a restaurant, or in social settings. It is mainly due to lack of education. Esposito is utilizing her struggles to educate society about Celiac Disease. I have great respect for Jennifer Esposito. She speaks out about Celiac Disease more than any other celebrity out there. Esposito is so dedicated to the cause, that she has penned a book about her struggle, and also wants to share her favorite Gluten Free recipes. She has plans to open up a Gluten Free bakery in the near future.
Thank you, Jennifer Esposito, for everything you have done for the Celiac Community!

Sources:
http://www.starpulse.com/news/index.php/2011/07/18/jennifer_esposito_details_her_struggle
http://www.foxnews.com/entertainment/2012/11/20/jennifer-esposito-cbs-ignorance-celiac-disease-makes-me-sick/
http://en.wikipedia.org/wiki/Jennifer_Esposito

(photo courtesy of: http://la.cleanplates.com/files/2013/03/JenniferEsposito.jpg)

Why Structure Is Important For Someone With Bipolar Disorder.



Before I was diagnosed with Bipolar Disorder, my life was absolutely chaotic. I was working full time, I had a full course load in school, and my home life was unstable. I had no structure. I had no discipline, and no focus. The slightest break in my schedule, sent me into a tailspin. I was overcome with so much anxiety, it sent me into a manic state.

After my diagnosis, I tried putting myself on a schedule, and my moods started to stabilize.
Four years later, I have noticed that my moods change when there is the slightest change in my routine. For example, when my back started giving me problems, and I was unable to do my job as a CNA, my moods began to change. One day, I would be full of anxiety, the next, I would be in a deep depression. I decided to get back into freelance writing, and I put myself on a work schedule. Since I have been doing that, I have been a lot more stable. Writing has given me an outlet, and putting myself on a schedule, and sticking my routine, has given me a feeling of purpose. I have a reason to get up in the morning, and a reason for hope.

Those of you with Bipolar Disorder, it is important to stick to a routine. This will help stabilize your mood swings, not to mention, give you a sense of purpose. What I have been doing is writing down a schedule of what I have to do during the day. Since I work from home, I set a time frame of when I write, when I shower, when I do dishes, make the bed, break for lunch, etc.

If you go to school, and/or work outside of home, write down everything that you need to do for the day, and focus on one thing at a time, even if it is as mundane as showering, or as serious as taking your medicine. Work your doctor/therapy appointments into your schedule. If your routine is interrupted, do not panic. Take a deep breath, and focus on the interruption.

Buy yourself a daily planner, download a schedule app onto your cell phone, download a scheduling program onto your computer, etc. Write everything down. I assure you, this will help stabilize your mood swings.
Good luck! :-)

(photo courtesy of: http://thumbs.ifood.tv/files/images/bipolar%20disorder.jpg)

Monday, June 10, 2013

Celiac Spotlight: Elizabeth Hasselbeck.


Elizabeth Hasselbeck is one woman whom I admire, for many reasons. The biggest reason being, she is an advocate for Celiac Disease. She was diagnosed with Celiac Disease in 2002 after her experience on television show, "Survivor." For years, she had been feeling sick. She went to several doctors and specialists, with little success. It was not until her experience on "Survivor," when she started to feel better after living off the land. After "Survivor" was over, she revisited her doctor, and was properly diagnosed with Celiac Disease. She has penned two books, discussing her experience with Celiac Disease, and being Gluten Free.

Her first book, "Deliciously G-Free," was a bestseller on many lists, including, The New York Times. In this book, she talks about her Celiac experience, and shares 100 of her favorite recipes, 100% Gluten Free.

Her second book, "The G-Free Diet: A Gluten-Free Survival Guide," is a guide to living Gluten Free. In the book, she defines what Celiac Disease is, how to read food labels, and she provides examples of shopping lists, to help guide you to which products are Gluten Free.

I have tried a few of Elizabeth Hasselbeck's recipes, and they are absolutely delicious. You can hardly tell that the dishes are Gluten Free! Hasselbeck is one of the most famous Celiac ambassadors. She has spoken out, several times, about her Celiac Disease, and her story has helped many Celiacs cope with their diagnosis, including myself.

Celiacs, please look into purchasing her books. The recipes are delicious, and Elizabeth Hasselbeck's story will touch your heart, and inspire you to also help people coming to terms with their Celiac diagnosis. The only problem I have come across with her books is, the books make Celiac Disease, and living Gluten Free sounds much like a trendy diet. The reason why I recommend her books is because of the recipes. If you are a huge fan of Italian food, like me, you will enjoy the books.

Sources:
http://en.wikipedia.org/wiki/Elisabeth_Hasselbeck
http://www.imdb.com/name/nm0276829/
"Deliciously G-Free," By Elizabeth Hasselbeck

(photo courtesy of: http://cdn2.mamapop.com/wp-content/uploads/2010/12/Elisabeth-Hasselbeck-525x595.jpg)

Where's The Representation Of Celiac Disease In Movies?

 
For the past several days, I have been trying to find any representation of people with Celiac Disease in movies, and I cannot find ANY representation. I find this quite disturbing, due to the fact that Celiac Disease is on the rise. More people than ever are being diagnosed with this life-changing, auto-immune disease. As of late, there are a lot of misconceptions about this disease. Society thinks that it is another word for being on a "trendy" Gluten Free diet. People think that we are "annoying cry babies."

The Celiac Disease community would not be in such an uproar if we were better represented. Would it be too much to ask that we were represented in movies? One percent of Americans have Celiac Disease. Some have already been officially diagnosed, and most haven't. There are millions of Americans in the United States, and one percent is a lot of people. It would be only fitting that we were represented. Not only that, it would make room for more Gluten Free products to be available to us, not only that, it may even help scientists develop a cure for this disease.

(photo courtesy of: http://sandiegobargainmama.com/wp-content/uploads/2011/06/movie1.jpg)

What Is Refractory Celiac Disease?

Refractory Celiac Disease is defined as one whose symptoms do not improve, even while on a Gluten Free diet. In order to be properly diagnosed as someone who has Refractory Celiac Disease, many questions must be answered:
  1. We must make sure that there is no other cause for this problem. There are many conditions that may mimic Refractory Celiac Disease.
  2. We must make sure that one is truly Gluten Free. Gluten is hidden in the most unlikely of places, including medication, envelopes, body wash, and make up, to name a few. If you eat out a lot, you run a risk of cross-contamination. 
If all of these theories have been debunked, then the only was to measure whether or not you have Refractory Celiac Disease, is with a biopsy. When compared to the original biopsy, doctors can determine whether or not there has been any improvement.
If doctors conclude that you do have Refractory Celiac Disease, it is important for doctors to check for complications, such as lymphocyctic Colitis, lymphoma, and pancreatic insufficiency.
If you have Celiac Disease, and your symptoms have not improved, make an appointment with your Primary Care Physician, or your GI doctor immediately. It is better to be safe than sorry, especially with the risk of the above complications. 

(photo courtesy of: http://www.dietforceliacdisease.com/wp-content/uploads/2012/09/For-Refractory-Celiac-Disease-249x300.jpg)

Sources:
http://www.celiac.com/articles/104/1/Refractory-Celiac-Disease/Page1.html

Saturday, June 8, 2013

(GF) Restaurant Review: "Cheeseburger In Paradise," Myrtle Beach, SC


Last summer, my boyfriend and I went to South Carolina for vacation. During that vacation, we dined out. Because of my Celiac Disease, it was hard to find a place that could accommodate my dietary needs. We happened to have stumbled upon Cheeseburger In Paradise, in Myrtle Beach, South Carolina. We noticed, online, that they had a Gluten Free menu, so we decided to try it out. We went in, and were seated. I told the server that I had Celiac Disease, and needed to be Gluten Free. The server gave me the menu, and gave us a couple of minutes to look over the menu. A few minutes later, the manager of the restaurant came out, and chatted with me about how they do things at the restaurant. He was extremely kind, and accommodating. I felt extremely comfortable there. I got my meal, and it was amazing. It was the first burger and fries I had had in a long time, and I was super excited. The manager checked up on me to make sure I was okay, and I told him that everything was perfect. After we were finished eating, my boyfriend and I left a very nice tip for our waitress, who happened to have been new. She got a crash course in accommodating someone with a dietary restriction. She did a wonderful job.
I was extremely pleased with the service I received there, and if I go back down there, I will definitely go back to the restaurant.
Celiacs, if you are in the Myrtle Beach, South Carolina area, you HAVE to visit this restaurant. They go out of their way to make you feel comfortable. The food is amazing, and the staff is warm and accommodating.

To find out more about the restaurant, and their other locations, visit:
http://www.cheeseburgerinparadise.com/Cheeseburger-Locations/SC/Myrtle-Beach/Overview.aspx

(photo courtesy of: https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5rIEQo1-bJD_84aa4gN2op1-2JLv5JPlC8K1VnjDGmjaEwGCUVjQR67aTnKoVFenPM8E3obn50eElljNDe78TFAiwHdKcpFdURkq0QEGug1Wqe3AyHDhMBnamHntUkgy8N-unN_UMpDc/s320/Cheeseburger_in_Paradise.jpg)

Friday, June 7, 2013

Brain Differences in Celiac Patients


As I was conducting research, I came across an article that theorizes there are brain differences in those who have been diagnosed with Celiac Disease. It is being said that people with an official diagnosis of Celiac Disease, via biopsy, have brain changes associated with areas of the brain, such as: memory, muscle control, learning, speech, and sensory perception.

During a study of 17 patients with a biopsy-diagnosis of Celiac Disease, researchers found that there were small volumes of brain cells in the brain's grey matter. Researchers also found that there were high amounts of bright, white spots in their brains. Those white spots, put those suffering from Celiac Disease at a risk for stroke, dementia, and even death.

This is something I never even knew. It puts a lot of things into perspective, and it makes a lot of sense, when you think about it. Celiac Disease is an auto-immune malnutrition disease. It's only natural that the malnutrition affects other parts of the body as well. When the body does not get the nutrients it needs, it puts the body in a vulnerable position.
With this in mind, in order to find out how much the disease has impacted the body, I think it is a very smart idea to get an MRI of the brain. I certainly would want one. Dementia has affected my family. My grandmother had Celiac and Dementia, and died from both.

This definitely is something to think about.

Source: http://celiacdisease.about.com/b/2013/06/07/asymptomatic-brain-changes-seen-in-people-with-celiac-disease.htm?nl=1

(photo courtesy of: http://healthy-family.org/wp-content/uploads/2007/11/brainscan.jpg)

Celiacs, You Can Make Almost Any Meal Gluten Free!


One thing that scared me, when I was diagnosed with Celiac Disease, was that I would be unable to have delicious food. I felt like I was doomed to eat cardboard for the rest of my life. The more I became educated about Gluten Free cooking, the more I was able to turn my favorite recipes into a Gluten Free meal. Most of the time, these recipes came out tasting amazing. Other times, the dishes came out bland and crumbly. Most first time Gluten Free cooks are at a loss as to how to make their recipes come out tasting delicious.

One thing that I learned is that when a recipe calls for All-Purpose Flour, you can substitute with the GF All-Purpose Flour. Here, I would advise you to add a teaspoon (sometimes more, depending on the amount of flour being used) of Xantham Gum. Xantham Gum works in a similar way as Gluten, by preventing the dish from being crumbly. It holds everything together.

The only recipes that you may have an issue with substitutions will be ones that ask for oats, granola, and some wheat ingredients. I have found MANY recipe books extremely helpful when I am in the kitchen. Here is a list of some recipe books that I use on a regular basis:

  1. "4 Ingredients Gluten Free," by Kim McCosker and Rachel Bermingham: This book consists of recipes that are easy to make, and use inexpensive ingredients. This book contains more than 400 recipes.
  2. "The Gluten Free Bible:" This book has many delicious recipes that come out absolutely mouth-watering delicious.
  3. "Deliciously G-Free," by Elizabeth Hasselbeck: I LOVE this book. Elizabeth Hasselbeck writes beautifully about her experience with Celiac Disease, and she shares recipes that her family loves.
  4. "Gluten Free Everyday Cookbook," by Robert M. Landolphi: This author wrote this book in loving dedication to his wife, whom suffers from Celiac Disease. He talks about what he and his wife go through, and he shares some of their favorite, mouth-watering recipes.
When I am in a pinch and want to find a recipe fast, I go online and use www.allrecipes.com. There are not many recipes that are Gluten Free on the site. However, once you become more GF cooking savvy, you will be able to make just about all your meals delicious and Gluten Free.

(photo courtesy of: http://cdn.blogs.babble.com/family-kitchen/files/2011/12/Deliciously-Gluten-Free.jpg)

Connecticut mom making waves with her gluten-free macaroons.

If you are gluten free and from CT (like I am), you will be delighted by this story. A mom in Enfield looked for a way to work and be a s...